What is Down Syndrome...
Most people have 23 pairs of chromosomes, for a total of 46. But a baby with Down syndrome has an extra chromosome (47 instead of 46) or one chromosome has an extra part. This extra genetic material causes problems with the way their bodies develop.
Babies with Down Syndrome tend to develop more slowly than other babies do. They may start walking later than other babies. About half are born with heart defects, which means there is something different with the way their hearts developed. Sometimes these problems can be corrected by surgery. In Taylor's case, she suffered with other complications besides her heart.
Approximately 4,000 children with Down syndrome are born in the U.S. each year, or about 1 in every 800 to 1,000 live births.
DOWN SYNDROME CREED
My face may be different but my feelings are the same. I laugh and I cry and take pride in my gains I was sent here among you to teach you to love as God in the heavens looks down from above To him I'm no different, his love knows no bounds; it's those here among you, in cities and towns, that judge me by standards that man has imparted, but this family I've chosen will help me get started For I'm one of those children so special and few that came here to learn the same lessons as you.
That love is acceptance, it must come from the heart;
we all have the same purpose, though not the same start. The Lord gave me life to live and embrace, and I'll do it as you do but at my own pace. ~Author Unknown
Our "Friend" Alex
Alex is two years old and has Down Syndrome. He has already had 2 open heart surgeries!! Alex is a very happy and active two year old boy. Thanks to mommy Josselyn for sharing his story and picture with us!!
Jacob and Dr. Jill
This is one of Taylor's old friends, Jacob. I met Jacob and his mom in the NICU just after Taylor was born. Jake's mom, Kerri, and I keep running into each other at hospital fundraising events. We have recently began a new and improved friendship where we are trying to keep in touch more!
Such a sweetie!
Jacob was born about 8 months before Taylor. He was 7 1/2 weeks premature and wighed 3lbs, 7oz. He spent 2 months in the NICU and had open heart surgery at 6 months. His heart surgery was just the beginning of a long journey of medical issues and surgeries. In his 8 years, he has had 20 surgeries. He has severe sleep apnea and has to be on a bipap machine with oxygen every night. He recently had his second open heart surgery and is doing well from a cardiac standpoint.
Jacob's Mommy and Sisters
Jake is having a lot of gastrointestinal complications and mom is trying to get him in to see several specialists. Jacob has been such a trooper through all of his surgeries and treatments. He is very smart, energetic, adorable, and amazingly strong....just like his mama!!
A beautiful video I received from Kerri, who is Jacob's mommy and a great friend of mine!